Pomoc dla Patryka Leszczyńskiego
1% dla Patryka Leszczyńskiego

About me

My name is Patryk and I thank you for visiting my web page!!! I came to this earth on the 30th of April 2009 at 19:27pm, four days late of my predicted term. This was the happiest day to my parents and I was finally able to cuddle up to my mum. I weighed 4kg and 180g and received the highest  Apgar score possible. My parents brought me to my new home on the 8th of May 2009, where there was a colourful bed and loads of toys waiting for me.

When my mum and I went for our first doctor visit, it wasn't joyful. I had only gained 20 grams of weight. After a week, my mum got a letter from IMiD, "institute of mother and child" that the doctors suspected Cystic Fibrosis and we needed to send out another sample for analysis.  My parents were waiting with worry for the results and my mum was constantly checking to see if I was salty. It was a terrible time for my family, but I was unaware of anything happening to me. The DNA results came in after a 3 week period and showed that I was a "definite carrier of Cystic Fibrosis". My mum and dad had a sigh of relief, but new that I would still have to undergo a perspiration test to eliminate the possibility of me having the disease. We were invited for a sweat test on the first of July 2009 and this is the day that has turned our world upside down. My mum was hysterically crying and my dad too shed his tears in the corner. The entire family was waiting and hoping for good news, but unfortunately it never came!!! The doctor's words will forever ring in mum's ears, "UNFORTUNATELY THE RESULTS AREN'T GOOD, 106 CHLORICS IN THE SWEAT", and had taken away my chances at living a normal and healthy life.

Today, I am almost 9 months old and am a normal, happy and full of life boy. Mum gives me inhalation treatment 2 to 3 times a day and that's how many times I have drainage performed as well. I receive all the needed vitamins and mum gives me Kreon , because due to the Cystic Fibrosis my pancreas isn't functioning properly. I am also on a high calorie and protein diet. The doctor says that I'm so handsome that she can't even tell that I'm ill, but inside I carry the very cunning and dangerous Cystic Fibrosis. It's a disease with a thousand masks and we're hoping that in my case it won't be so severe and that the medications and interventions which I receive on a daily basis will somehow befriend the disease. It doesn't always seem to work, because sometimes I'll get stuck with some sort of infection, then my mum has to give me inhalation treatment even five times a day and give me all sorts of medication. Lately, I had a dangerous bacteria cling to me that is common to attack children with Cystic Fibrosis and I had to have anti biotic treatment for two weeks, which I felt very ill after.

Aside from that, we are doing our best to live normal lives. I often go for walks with my mum, I visit my best friend. Nan often plays with me and grandpa really spoils me lots and carries me round cuddling me for a whole day even.

We are of high hopes that sometime in the near future the scientific community will find a cure for this disease and that I'll be able to live a normal, healthy and long life, but till that day comes, we've got to fight the struggle, not give in and do everything possible not to allow the illness to cause great damages to my organism. But the fight isn't a fair one.

Liczba odwiedzin od dnia 2010-01-21: 188061

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